It was the first “normal” dinner that my husband and I had eaten in weeks. We took an hour for ourselves and sat in a restaurant to dine like regular people.
We were finally feeling good after a month long nightmare.
Weeks earlier, during the 29th week of my pregnancy, I was diagnosed with preeclampsia and was admitted to the hospital on strict bed rest. After laying in bed for four weeks, our daughter was delivered by emergency c-section, seven weeks premature. She weighed 3.3 lbs and went straight into an isolette in the NICU. She stayed there after I was released from the hospital. We went to visit her every day and every night. When we weren’t at the hospital, all we did was worry.
But that night we felt pretty good. When we left the hospital that afternoon, she was doing well. Her health was good, she was gaining weight, and should soon be able to reach the 4 lb goal needed to go home.
So we sat and ate and talked for an hour. We happily went back to the hospital for our nightly visit with our daughter. When we entered the NICU, her isolette was not in the “non-urgent” room where it normally was.
Where was she?
In a panic, we questioned the nurses, who ran to get the doctor. He ushered us into his office. Our tiny baby had a setback, he explained. She was having trouble breathing and had been moved to the “urgent” room and was hooked up to a respirator. After a lengthy explanation, which I barely understood, he took us to see her.
I froze when I saw my tiny daughter hooked up to tons of tubes. I couldn’t do anything but sit in a chair and cry while I stared at her. After a while, the doctor practically forced my husband to take me home to get some rest. My crying was not helping anything.
This was the scene that went through my mind as I watched a recent This is Us episode.
The night I watched just happened to be my once premature daughter’s 20th birthday. I still cannot believe that 20 years have gone by since I stared at her in that isolette.
The episode was titled “The Waiting Room.” In it, Kate went into premature labor while the family sat and waited to hear news about her and the baby. Kate and Toby stared at their tiny son in the isolette during the last scene, bringing me back in time.
This Is Us does that to me sometimes. I identify with the characters often. It usually happens with Rebecca because I lost my husband at a young age, just like she did. Her navigation of life as a widowed mom always strikes a chord with me.
This time it was Kate. I remembered that terrified feeling of seeing my too tiny child laying there helpless while there was nothing I could do.
It’s not the way it is supposed to be.
A baby should be delivered on time, healthy, happy, and beautiful. We should all take our babies home in a pink or blue blanket while taking tons of smiling pictures and videos. Watching our babies hooked up to machines and barely breathing is so wrong and heart-wrenching.
Luckily, my daughter’s setback was short-lived. Within 48 hours she was once again breathing on her own and back in the “non-urgent” room. Two weeks later she reached her goal-weight of 4 lbs. and was able to come home.
She is now a happy college sophomore, but it has not always been an easy road. Throughout the years she has been diagnosed with ADD and anxiety disorder. She is extremely sensitive and truly seems to feel pain slightly worse than most of us. She has separation issues (yes even at 20 years old.)
Are these issues related to being born premature?
I have never received a definitive answer to that question but my instinct says yes. I believe that coming into the world before she was ready and spending her first few weeks of life in an isolette, and not with her parents, must have had some effect on her long-term.
I feel for the characters on my favorite TV show, as well as anyone else beginning their journey with a preemie. It is a scary time.
I am grateful and happy every day that my daughter is doing well. I know that there are much worse scenarios than ours. Although it was a very rocky start, her future is bright.
If I could talk to Kate and Toby, that is what I would tell them.
Stacy was a stay-at-home mom/part-time preschool teacher whose life was turned upside down in 2011 when her husband passed away suddenly of a heart attack. She is raising her two fabulous daughters, now ages 18 and 20, who are turning into wonderful young women. In 2016, she started a blog about her experience as a young widow, The Widow Wears Pink. This led her to write for other publications including Huffington Post, Today.com, Scary Mommy, Grown & Flown, Kveller, Modern Loss, Thought Catalog, and many more. In 2018 she started Living the Second Act with fellow writer Mimi Golub. Today, Stacy and her daughters are happily living their “new normal” while always keeping her husband’s spirit alive.